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, by Jacqueline Marcell
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Product details
File Size: 642 KB
Print Length: 368 pages
Publisher: Jacqueline Marcell / Impressive Press; 2 edition (July 19, 2010)
Publication Date: July 19, 2010
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B003WMA8KU
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Amazon Best Sellers Rank:
#444,402 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
This book helped me at a time when I was desperately in need of empathy and humor. I am dealing with a situation very similar to the author's, and this was the only book I have read that spoke honestly about the 'Jekyll / Hyde' personality, especially in a parent that likely had untreated mental illness before dementia. Nothing on mainstream websites, nor the platitudes of the medical profession, begins to address this- in fact, all the suggestions about what to do for a 'normal' elder can actually make the situation worse. Feeling alone, misunderstood, exhausted, and desperate are feelings many caregivers experience; those of us dealing with 'JH' add constant fear to the mix about what will trigger the person. I applaud Ms. Marcell for writing candidly about her experience. I laughed out loud during one of the recent nights when I was afraid to go to sleep.In the interest of providing an objective and constructive review, my only 'criticisms' are that there is not enough advice for people who are still trying to work full time (as I am) and for people who simply don't have the financial resources to pay for in-home help. I know there are caregivers who have not one single hour during which 'someone else' can shoulder the load. Many websites say that caregivers shouldn't be afraid to ask for help. This is simply insulting. Every caregiver I know is screaming for help, but we are stuck in a system where (unless you have a loving, nearby extended family to share the load) - you are truly on your own.
I read this book when my mother was suffering from dementia. It helped a great deal. I have ordered several times now for friends who are going through the difficult time of caring for loved ones who have Alzheimer/dementia and they have expressed how much this book helped them. I particularly like that there is some humor interjected in the writing since those who face these times know that you must sometimes find a little humor in challenging times. It is so well written and so true to the subject. A must read if faced with caring for someone.
This is a must read for anyone with a parent or parents with dementia or alzheimers. After my dad was diagnosed and starting acting with more rage than I ever imagined, I started looking into books to help us. This was the first book that caught my eye, by the title only. After reading reviews I bought it. This book was written from a loving caring daughter and was written from the heart. This was written with some humor and you've got to have a little humor to deal with life. I truly don't know how she got through this on her own. The author gives a lot of pointers I would have never thought of. She has lots of great advice for dealing with parents that she had to find out the hard way. She definitely makes it easier on the rest of us to get through these hard times with tons of great advice. I'm only at the beginning of this ordeal, but she has made it seem a lot easier to get through after reading this book.
BEST BOOK EVER for anyone dealing with aging parents and the myriad of issues that they experience. Very insightful and funny. Makes you realize you are NOT ALONE in this journey.
My mother suffers from Vascular Dementia. I have been her main caregiver since Dad passed away several years ago and she directs all her anger and frustration at me. This book has really made me rethink how I interact with her. It is very well written: informative, funny, and tender. I highly recommend this book to caregivers- it is a must read!
Ms Marcell's book is helpful in that anyone going through a similar situation can find some parallels and insight into the world of dementia. This story will tear at your heartstrings with all the obstacles that are overcome in the lives of parents, daughter, and caregivers! You realize too that some challenges are much worse than your own. Thankful that God has spared us the worst so far.
Dealing with my mum, who has Lewy Body Dementia, and reading many other books, I was at first put off by the humor in this book; however, I realized that without the humor it would have been rife with stress, worry, and a completely different story - one that would be hard to plow through. With dementia,a caregiver and the family needs to hold on to their humor for their own sakes, and this book helps.Ms. Marcell's situation was, in many ways, parallel to mine own - parent(s) living many miles away and not doing well. Fortunately, she was able to journey to them and help them for 9.5 months, while struggling to figure out (and, believe me, it's not as simple as some may believe) how best to help her mum and dad. She uses humor to cope, as we do, as well.There are elements of the story which struck me as brilliant (club on the steering wheel, for one) and others I understood her frustrations with (an unhelpful medical community). Knowing someone else is ) struggling with the complex issues that arise takes some burden off the reader's shoulders, insofar as understanding they are not alone in this fight.There are naysayers in these reviews, but there always are - some are just happy to be malcontent. Looking for the love and the possibility of becoming a parental caregiver and meeting their wishes isn't easy, and no one does it perfectly (how can they when the parents seem to forget what they wanted!). Yet, Ms. Marcell is able to help her parents stay in their home for quite some time (which we were unable to accomplish), and is such a ball of energy I found myself agape at what she was able to achieve.This is a wonderful handbook, full of lessons made easy through the pitfalls and triumphs of the author and her cohorts; the lessons keep coming while the humor tickles and resorts in out-loud laughter (at least for me) when she hits home.I highly recommend this book for those who are trying to accomplish the same herculean feat, as well as others who may be facing the possibility of dealing with their parents. Had I read this six years ago, perhaps we'd be in a different place, now. Yet, I can recommend it to others in hopes it will allow them insight into the nightmarish world of caregiving and dealing with dementia.She even has resources that will help the reader/caregiver, as well. A fine job!
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